Our Duchenne muscular dystrophy home care can help you manage daily tasks, providing support as mobility becomes more limited and your needs change over time.
Living with Duchenne muscular dystrophy brings real challenges, particularly as progressive muscle weakness begins to affect movement and everyday life. The symptoms of DMD typically present in early childhood and can lead to significant challenges in the activities of daily life.
As the condition progresses, tasks such as personal care, meal preparation, and getting around the home become harder. Our Duchenne muscular dystrophy home care services are designed to support you at every stage, adapting as your needs evolve.
Whether you need help with personal care, domestic tasks, or medication routines, our care team is here for you. We can also assist you in attending medical appointments, following exercises outlined by your physiotherapist, and getting out to social events.
Our carers are trained to use necessary medical equipment and assistive devices, so you always have the right support in place. Duchenne muscular dystrophy care at home means you can remain independent and stay in familiar surroundings while receiving the care you need.
We know that families living with DMD need reliable, consistent support they can count on. At Tiggo Care, we work with you and your loved one to build a personalised care plan that fits your individual needs and reflects your preferences.
Our flexible home care services include home care visits, respite care, and live-in care, so help is always available. Contact us today to find out how our Duchenne muscular dystrophy home care in London can help.
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Whatever your care needs and wherever your loved one is on their care journey, please contact us and let’s talk. We're here to help.
Duchenne muscular dystrophy (DMD) is a progressive neuromuscular disorder that causes muscle weakness and mobility issues.
It is the most common form of muscular dystrophy and primarily affects children, particularly boys. DMD is caused by a fault in the dystrophin gene, which prevents the body from producing the dystrophin protein that keeps muscle cells intact. Without it, the body loses muscle mass over time, and muscles are gradually replaced by fat and fibrous tissue.
DMD symptoms typically appear in early childhood. As the condition progresses, most people with Duchenne MD will need a wheelchair by late childhood or their teenage years and may eventually require other mobility aids like powered wheelchairs or electric scooters.
In early adulthood, progressive weakening of skeletal muscles, including respiratory muscles, begins to affect respiratory function and heart health, leading to life-threatening complications. In recent years, advances in treatment and supportive care have significantly improved life expectancy. Many people with DMD now live into adulthood, and some to middle age.
There is no cure for DMD, but treatment can slow its progression and improve quality of life. Corticosteroids like prednisone or deflazacort are commonly prescribed for Duchenne muscular dystrophy (DMD) to help slow the progression of muscle weakness and maintain function for longer.
Vamorolone is a newer corticosteroid that can slow the progression of muscle weakness without many of the side effects associated with steroids. Ongoing clinical trials continue to offer hope for families affected by the condition.
Home care allows individuals living with Duchenne muscular dystrophy to stay in the comfort of their own homes while getting the support they need at different stages of the condition. The progressive nature of DMD means that most people will require increasing levels of support as their mobility and independence decline, and our care team is ready to offer person-centred care.
A multidisciplinary approach is important in managing Duchenne muscular dystrophy (DMD) and improving wellbeing, with a team that typically includes neurologists, physiotherapists, occupational therapists, and specialists in respiratory and cardiac care.
The neuromuscular specialist should function as the lead clinician in this team, working alongside other healthcare professionals to coordinate the best possible care.
Our award-winning carers assist with a wide range of daily tasks, including:
People with DMD often experience emotional difficulties, such as depression and social isolation, as physical limitations develop. Psychosocial support is an essential component of comprehensive care for people with DMD and their families. Our carers are there to provide reassurance and companionship alongside practical help.
Some people with DMD may also have learning disabilities, and our carers adapt their support to meet each person's needs. As the condition progresses, people may also need access to speech and language therapists and nutrition teams. Our care team can help coordinate this with your wider healthcare professionals.
Comprehensive care for DMD should include regular assessments and adjustments to the care plan as your needs change. Families can collaborate with our team to develop a tailored care plan that addresses the holistic needs of people with Duchenne muscular dystrophy.
A specialist physiotherapist can create a personalised programme that includes stretching, strengthening, and mobility exercises to help you remain as independent as possible. Our carers can assist you in following that programme every day.
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Our home care service is based on personal experience.
We understand, first-hand how important it is to secure flexible and bespoke home care for your loved one.
“Tiggo Care is born out of my own personal experiences, following my struggle to find suitable care for my parents, both of whom lived with rare diseases..."
Chris Williams - Tiggo Care Founder
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At Tiggo Care we understand how precious your loved one is to you and how unique they are. We also appreciate how overwhelming it can be to research and source the most suitable type of care.
We fundamentally believe that there is no ‘one size fits all’ care package and like to work with you and your loved one to understand your specific requirements. We’ll then create a tailored care package and match your relative with their ideal carer.
Unlike some other care providers, we are fully regulated by the Care Quality Commission. This means we are regularly inspected, rated and audited to ensure we are a safe, effective, caring, responsive and well led organisation, committed to delivering the best possible care.
We’re also proud members of the Homecare Association, the U.K’s membership body for home care providers, which holds organisations to a high set of standards and requests them to abide by a strict code of practice
At Tiggo Care, all of our carers undergo a rigorous recruitment and induction process. They are fully vetted and background checked, with all references followed up. Our carers undertake their training on the best eLearning system currently available within the UK care market, ensuring they are well placed to deliver the best possible service. Specialist training courses such as moving and handling, medications and basic life support are also completed by our carers face to face, as we feel these courses are more effective when delivered in person.
If you like what you've read and are ready to access one of our care services or perhaps just have some questions, please follow our simple 3 step process below.
Send us some additional information about your request by emailing us or by using the form below. Alternatively, if you would prefer to speak with someone directly, please feel free to call us.
Our care manager will arrange a free consultation with you at your loved one’s home to better understand your requirements, create a personalised care plan and pair your loved one with a suitable carer.
And that’s it. You’re all set! We’ll introduce you to your loved one’s carer and the whole team, who’ll be able to provide you with all the ongoing support you’ll need.
Home modifications can significantly improve mobility and independence for people with Duchenne muscular dystrophy (DMD). Practical changes include installing ramps, fitting grab bars in bathrooms and around stairs, raising the height of chairs and furniture, fitting lever-style door handles to accommodate reduced grip strength, and using low-pile carpeting or hard flooring to make it easier to move around in a wheelchair. Rearranging kitchen cabinets to lower shelves and using smart home technology with voice commands can also help people with DMD manage their environment more easily.
A carer can assist with daily tasks such as personal care, meal preparation, medication routines, and getting to appointments. They can also support people with DMD in following exercises outlined by their physiotherapist, focusing on maintaining range of movement and overall function. Carers providing home care for people with Duchenne muscular dystrophy should be trained to use necessary medical equipment and assistive devices to provide the right support at every stage.
The progressive nature of DMD means that most people will require increasing levels of support as their mobility and independence decline. In their teenage years and into early adulthood, young adults with DMD will typically need support with mobility, personal care, and daily tasks. As needs can change quickly, having a flexible, personalised care plan in place is so important from the start.
Home care should be considered when daily tasks such as personal care, cooking, or moving around the home become difficult due to mobility changes. People with DMD may find it challenging to move around the house, open doors, or use stairs as the condition progresses. This is often when support from a trained carer makes the biggest difference. Tiggo Care's Duchenne muscular dystrophy home care services are flexible and can be arranged at any stage, whether you need occasional visits or full-time support.
Tiggo Care offers a range of flexible care services, including home care visits, respite care, and live-in care, so there is always an option to suit your needs. Each service can be tailored to help with personal care, domestic tasks, meal preparation, attending appointments, and social activities. Care plans for people with Duchenne muscular dystrophy are built around specific needs and preferences to ensure effective support at every stage.
People with DMD may experience emotional and mental health difficulties as their physical function declines. Depression and social isolation can affect both the person living with DMD and their family. Psychological support is an essential part of comprehensive muscular dystrophy care. Our carers can provide compassionate companionship alongside practical support.
Contact our care team using the form below or by calling our office and we'll organise a free consultation to advise you on your specific care needs.
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